Palliative and End of Life Care Research Institute
The Calvary Palliative and End of Life Care Research Institute was formed in 2017.
The Institute is “virtual” in nature and connects researchers across 4 specialist palliative care units at Calvary Bethlehem, Victoria; Calvary Bruce, ACT and Calvary Mater Newcastle and Calvary Health Care Kogarah in NSW.
There is a growing body of research being conducted through the Calvary network of palliative care services on managing symptoms such as pain, nausea, breathlessness and delirium. There is also psychosocial research to investigate the experiences of patients, their families and friends. Social change has had an enormous impact on how and where people die and Calvary’s palliative care services bring a depth of experience as well as evidence-based expertise, particularly for our clients in residential aged care.
The Calvary network has undertaken ground-breaking research over many years and its researchers work with National and State research collaborations which bring together leading clinicians and researchers in medical, allied health and nursing fields. Much of this innovative and ground breaking research initiated by palliative care clinicians here in Australia is changing palliative care practice around the world.
The key objectives of the Institute include:
- Profiling Academic and Clinical Research leadership in Palliative and End of Life Care being undertaken by Calvary researchers
- Facilitating broad industry and stakeholder dissemination of Palliative and End of Life Care research led by Calvary researchers or conducted in Calvary facilities
- Collaborating to strengthen the translation of research into practice
- Amplifying the influence and use of research being undertaken to key stakeholders and the wider health community
- Enhancing Calvary’s profile specifically in the area of Palliative and end of Life Care research
The Institute will be led by nationally and internationally respected researcher Professor Liz Lobb, Professor of Palliative Care at Calvary Health Care Kogarah, and Adjunct Professor at the University of Notre Dame in Sydney.
Research Projects by site
Dying to talk: Advance care planning for people with dementia
Funded by the Department of Health and Ageing and led by Palliative Care Australia, Professor Liz Forbat in Calvary Bruce ACT alongside Alzheimer’s Australia and Hammond Care is developing, implementing and testing new methods of supporting people with dementia. The project builds on Palliative Care Australia’s ‘Dying to Talk’ discussion starter. This work will implement and test a national approach to advance care planning for people with dementia.
Translating evidence into action to improve outcomes for palliative care patients and their care givers.
Funded by the Australian Government, DIISR Collaborative Research Network through the University of Notre Dame and led by Professor Liz Lobb (Kogarah) and Professor Jane Phillips (UTS) two Research academics and four PhD students have been appointed. Projects include: i) The PERSICOPE Project – to explore clinicians’ perceptions and patient impact of medication errors with opioids in adult specialist palliative care inpatient services, and identify strategies to support safe opioid delivery processes in palliative care; ii) DigiTech Pain Project- to evaluate the role of digital health technologies in facilitating older people’s pain self-management capabilities; iii) Mapping Grief – to investigate grief after expected and unexpected death involving longitudinal studies with participants at multiple sites; iv) The Sleep in Caregivers Project – to improve the sleep of caregivers of community palliative care patients; v) The VOICE Study – to investigate the role of family meetings in palliative care and vi) Evaluating Ambulance Care Plans – to explore the experiences of patients and carers on implementation of the Plan and the impact on Service delivery.
BEAMS Dyspnoea Study
Funded through the Palliative Care Clinical Studies Collaborative (PaCCSC), this pragmatic, phase III, multi-site, double-blind, placebo controlled, parallel arm, dose increment randomised trial of regular, low dose extended release morphine for chronic refractory breathlessness is being conducted at Calvary Mater Newcastle and Calvary Health Care Kogarah. The study aims to enhance the evidence base for the pharmacological treatment of chronic refractory breathlessness using potential therapies compared to placebo.