Statewide Progressive Neurological Disease Service
The Statewide Progressive Neurological Disease (PND) Service at Calvary Health Care Bethlehem offers a range of interdisciplinary assessment, management and education services for people with a diagnosed PND.
PND services include but are not limited to: Huntington’s Disease, Motor Neurone Disease, Multiple Sclerosis, Muscular Dystrophy, Multiple System Atrophy, Parkinson’s Disease, Progressive Supranuclear Palsy, Spinocerebellar Ataxias and others.
Each of these conditions is relatively rare, and as a result community based health care services and clinicians may see very few people with these conditions in their daily practice.
A key role of the Statewide PND Service, in collaboration with community organisations like MND Vic, is to build the capacity of health services and health professionals to better manage the needs of people living with MND.
Who would benefit from attending?
- Health professionals
- Case managers
- General Practitioners
- Allied health professionals
- Palliative care clinicians
- Residential care workers
- Care coordinators
- NDIS staff
Enabling People Living With MND to Live Well
A Practical Team Based Approach
A practical management workshop for health and disability sector staff. It will improve their ability to help the people with MND and their families to live well within the context of their disease progression.
The first Enabling People Living With MND to Live Well Workshop for 2018 will be set shortly and details posted here soon. Any queries please call 03 9595 3355 and ask to speak to either Karol Connors or Roxanne Maule.
(TBC) Level 3 Conference Room, 476 Kooyong Rd, South Caulfield VIC 3162
For enquiries, call 03 9595 3355
What you’ll get out of the day:
- Increased understanding about the varied roles of the multidisciplinary team
- Demonstration and opportunity to trial range of equipment used by people with MND, from communication devices to scanner controls for power wheelchairs.
- Participate in practical workshops on:
- Independence, mobility and comfort
- Nutrition management
- Communication and access technology
- Psychosocial and cognitive management
- Respiratory Management and end of life care
$165.00 (incl. GST) includes attendance at the Workshop, morning tea, lunch and afternoon tea.
Once you have registered, a password will be sent to you to access resources.
Capacity Building Activities
Our capacity building activities include:
- Community Education programmes
- Telephone Consultancy
- Telehealth education
- Telehealth liaison with local teams
- Onsite training and education to local teams
This commitment to the right service, in the right place at the right time, also drives the Statewide PND service commitment to research. Ensuring that education provided has a sound evidence base.
Statewide Progressive Neurological Disease (PND) Service – Capacity Building Education sessions.
Over the years there have been many requests from community clinicians to visit CHCB. In response to an increasing number of these requests staff within the Statewide PND service commenced offering the current series of community capacity building workshops in September 2014.
These full day workshops are run each year, and provide an opportunity to interact and exchange ideas about the complex management of people living with a PND diagnosis. The workshops incorporate multidisciplinary presentations from Allied Health, nursing and medical staff on current clinical management approaches and interventions. Participants are given opportunity to attend a range of interactive sessions where they have the chance to ask questions and trial a broad range of equipment, including hoists, wheelchairs, neck support collars and Eye Gaze controlled computers and computer based communication systems.
During the 2015/2016 financial year CHCB staff ran two of these workshops catering for nearly 100 participants. Participants stated that they valued the smaller group interactive sessions which allowed time for drilling down into specific issues with specialist clinicians who were willing to share their knowledge. The quality of life focus, using videos and testimony from real patients enhanced the learning experience and gave insight into the experience from a patient / family perspective. General feedback reinforces that these days have been well received, “excellent day, extremely beneficial and relevant to all areas of clinical practice” with “great food” and “excellent coffee”.
Feedback from these days suggested more targeted days would be of value, which culminated in the development of a post conference workshop which was run adjacent to the National MND Conference in September 2016. Conference participants who attended the workshop attended two workshops chosen from:
- Independence and Mobility – a session focused on equipment for transfers, mobility, and ADLs.
- Technologies for Communication & Environmental Control – which focused on technology primarily used with people living with MND.
- Swallowing and Nutrition Management – included an interactive discussion regarding intervention, timing and management of some of the issues experienced by people living with MND
- Psychosocial experience of MND for the client and family – This session explored some of the psychosocial challenges experienced by clients and their carers/families and gave particular insights into strategies to assist participants to identify and respond to suicidal ideation.
All participants then participated in a workshop that focused on End of Life Care and Management. This workshop covered respiratory and secretion management, Advanced Care Planning and gave insights into the particular interventions and approaches that were used by music Therapy and pastoral care to facilitate the transition from quality of life to quality of death in a supported sensitive way that ensured the patient and their family are looked after throughout.
Feedback indicated that 100% of participants felt the day long programme was relevant to their learning needs and improved their clinical understanding and knowledge of the management of Motor Neuron Disease.
Participants acknowledged the “Confident, intelligent and knowledgeable presenters” who “willingly shared their knowledge” through workshops that were “all equally informative with useful”. “The great focus on empowering the client and carer was acknowledge“ and the day was described as a “jam packed day of practical, clinically applicable team based care”.
In summary feedback from the day could be summarised with this quote from a participant “The day was informative – the workshops were interactive; most importantly, the whole day provided the “human face” of MND and what it means for those with the condition and their families.”
In response to numerous requests the team at CHCB have decided to run the MND post conference workshop day again, enabling clinical staff from our broader community to have the opportunity to attend. The day entitled “Enabling People Living With MND to Live Well : A Practical Team Based Approach” will be held on Friday the 3rd March. Registrations for this day will open late in January 2017. Please watch this space for news regarding this event.