Research at Calvary Public Hospital Bruce

Palliative Care and End of Life Care Research Projects

 

The Calvary Centre for Palliative Care Research, Canberra is a research initiative of Calvary Public Hospital Bruce, based at Clare Holland House.

The Centre operates to address priorities in: excellence in care, service development & innovation, clinical research and people & culture. Each project also addresses strategic national and local policy objectives.

The Centre’s mission is to make a substantial positive impact on palliative care, improve service delivery and improve patient and carer outcomes by:

  1. Conducting high quality, multidisciplinary research with a particular focus on the translation of research into practice.
  2. Building research capacity through training and mentoring palliative care clinicians, research students, career researchers and teaching staff.
  3. Advising, collaborating and consulting on key issues and challenges relating to palliative care research with the health industry, clinicians, government, patient/carer groups and other key stakeholders.
  4. Creating and sustaining a collegial, supportive and high performance research culture that is attractive to clinicians, the researchers and research students.

Project funding comes from competitive research grants, consultancies and from the ACT Health Department. Whenever possible, projects have national and international collaborators to embed the impact and engagement of work in multiple sites and contexts. We also work closely with relevant peak bodies, including Palliative Care Australia.

Professor Nicholas Glasgow

Head of the Calvary Centre for Palliative Care Research at Clare Holland House, ACT

Professor Nicholas Glasgow is a Fellow of the Chapter of Palliative Medicine of the Royal Australasian College of Physicians, a general practitioner, and Head of the Calvary Centre for Palliative Care Research at Clare Holland House, ACT.

A medical graduate of Auckland University, he worked full time in general practice in Auckland for ten years before taking up his first academic appointment in the early 1990s. Professor Glasgow came to Canberra in 1997 where he held several academic appointments: first with the University of Sydney in the Canberra Clinical School and then with the Australian National University (ANU), culminating in two terms as Dean of Medicine and Health Sciences and Dean of the Medical School from 2007-2016. He became an Emeritus Professor at the ANU in March 2018.

Professor Glasgow’s research interests include end of life and palliative care, asthma and respiratory health, chronic disease care and health system research including health workforce research. He is an accomplished supervisor of higher degrees, a well-regarded educator nationally and internationally, and an active scholar in medical education. He has served on a wide range of academic committees in Australia and overseas and in an advisory capacity to the ACT and federal governments over many years.

Current Studies

  • Breathlessness, Exertion And Morphine Sulphate Study (BEAMS): A pragmatic, phase III, multi-site, double-blind, placebo controlled, parallel arm, dose increment randomised trial of regular, low dose extended release morphine for chronic refractory breathlessness. Kanathigoda, S. (CI at Calvary Public Hospital Bruce, CHH) PaCCSC
  • Integrating Specialist Palliative Care into residential care for older people; A Stepped wedge trial (INSPIRED). Johnstone, N., Lovell, C., Parker, D., Agar, M., Forbat, L., Lam, L., Liu, W., Chapman, M.
  • Dying to Talk in the Bush. Glasgow, N., Rainsford, S., Kanathigoda, S.
  • Literature search looking for research already published around empathic distress, compassion fatigue and resilience in health professionals. Waterford, M.
  • Rural Residential Aged Care Needs Rounds. Rainsford, S., Johnson, N., Liu., W, Glasgow, N., Forbat, L.
  • Individualised gym program for inpatient palliative care patients for fatigue levels and functional status. Davies, P.
  • Preventable presentations at Emergency Departments by patients receiving specialist out-patient palliative care in the Australian Capital Territory. Forbat, L., King, S., Maher, K., Chapman, M., Ranse, K., Kamrani, S.
  • Family meetings in in-patient specialist palliative care: A mechanism to convey empathy. Forbat, L., Francois, K., O’Callaghan, L., Kulikowski, J.
  • The nature of conflict in palliative care: A qualitative exploration of the experiences of staff and family members. Francois, K., Lobb, E.A., Barclay, S., Forbat, L.

Publications

  • Forbat L, Johnston N., Mitchell I. (2019). Defining specialist palliative care: Findings from a Delphi study of clinicians. Australian Health Review doi: 10.1071/AH18198
  • Rainsford S., Phillips C.B., MacLeod R.D., Wilson D.M. (2019). Funeral and interment practices of rural residents: A mixed methods study. Death Studies doi: 10.1080/07481187.2019.1616853
  • Zhou, M., Du, W., Salvador-Carulla, L., Glasgow, N. (2019). Adverse drug event-related hospitalisation in persons with neurodevelopmental disorders: A state-wide retrospective cohort study. Journal of Intellectual Disability Research 63 (5), 429-440 doi: 10.1111/jir.12586
  • Zhang, H., Du, W., Gnjidic, D., Chong, S., Glasgow, N. (2019). Trends in adverse drug reaction-related hospitalisations over 13 years in New South Wales, Australia. Internal Medicine Journal, 49 (1), 84-93 doi: 10.1111/imj.14134
  • Carolan, C., Smith, A., Davies, G., Forbat, L. (2018). Seeking, Accepting and Declining Help for Emotional Distress in Cancer:  A Systematic Review and Thematic Synthesis of Qualitative Evidence, European Journal of Cancer Care   2, doi: 10.1111/ ecc.12720
  • Chapman, M., Johnston, N., Lovell, C., Forbat, L., Liu, W. (2018). Avoiding costly hospitalisation at end of life: Findings from a specialist palliative care pilot in residential care for older adults. BMJ Supportive and Palliative Care 8,102 – 109  doi: 10.1136/bmjspcare-2015-001071
  • Forbat, L., Robertson, J., McNamee, P. (2018). Couple therapy following prostate cancer surgery: A manual to guide treatment .Journal of Family Therapy 40, 86 – 110 doi: 10.1111/1467-6427.12129
  • Rainsford S., MacLeod R.D., Glasgow N.J., Wilson D.M., Phillips C.B., Wiles R.B. (2018). Rural residents’ perspectives on the rural ‘good death’: A scoping review. Health and Social Care in the Community 26, 273-294 doi: 10.1111/hsc.12385
  • Rainsford S., Glasgow N.J., MacLeod R.D., Neeman T., Phillips C.B., Wiles R.B. (2018). Place of death in the Snowy Monaro region of New South Wales: A study of residents who died of a condition amenable to palliative care. Australian Journal of Rural Health  26, 126 – 133 doi: 10.1111/ajr.12393
  • Rainsford S., Phillips C.B., Glasgow N.J., Macleod R.D., Wiles R.B. (2018). Dying at home in rural residential aged care: A mixed-methods study in the Snowy Monaro region, Australia. Health and Social Care in the Community doi: 10.1111/hsc.12583
  • Du, W., Glasgow, N., Smith, P.,  Clements, A., Sedrakyan,  A. (2018). Major inpatient surgeries and in-hospital mortality in New South Wales public hospitals in Australia: A state-wide retrospective cohort study. International Journal of Surgery 50, 126 – 132 doi:10.1111/hsc.12583
  • Rainsford, S., Phillips, C., Glasgow, NJ., MacLeod, RD., Wiles, RB. (2018). The ‘safe death’: An ethnographic study exploring the perspectives of rural palliative care patients and family caregivers. Palliative Medicine doi: 10.1177/0269216318800613
  • Forbat, L., Chapman, M., Lovell, C., Liu, W., Johnston, N. (2017). Improving specialist palliative care in residential care for older people: a checklist to guide practice. BMJ Supportive and Palliative Care 8, 347 – 353 http://dx.doi.org/10.1136/bmjspcare-2017-001332
  • Forbat, L., Robinson, R., Bilton-Simek, R., Francois, K., Lewis, M., Haraldsdottir, E. (2017). Distance  education  methods are useful for delivering education to palliative caregivers: A single arm trial of an education package (PrECEPt). Palliative Medicine 2, 581 – 588 doi: 10.1177/0269216317712849
  • Francois, K., Barclay, S., Lobb, E., Forbat, L. (2017). The Nature of Conflict in Palliative Care: A Qualitative Exploration  of the Experiences of Staff and Family Members. Patient Education and Counselling 8, 1459 – 1465 doi: 10.1016/j. pec.2017.02.019
  • Forbat, L., Kunicki, N., Chapman, M., Lovell, C. (2017). How and why are subcutaneous fluids administered in an advanced illness population: A systematic review. Journal of Clinical Nursing  9(10), 1204 – 1216 doi: 10.1111/jocn.13683
  • Forbat, L., Simons, J., Sayer, C., Davies, M., and Barclay, S. (2017). Training paediatric health care staff in recognising, understanding and managing conflict with patients and families: Findings from a survey on immediate and six-month impact. Archives of Disease in Childhood 102(3), 250-254 doi: 10.1136/archdischild-2016-310737
  • Rainsford S., MacLeod R.D., Glasgow N.J., Phillips C.B., Wiles R.B., Wilson D.M. (2017). Rural end of life care from the experiences and perspectives of patients and family caregivers: A systematic literature review. Palliative Medicine, 31, 895 – 912 doi: 10.1177/0269216316685234
  • Rainsford S. (2018). Palliative care in rural settings, Textbook of Palliative Care. MacLeod R.D., Van den Block, L. Springer p1-15
  • Rainsford, S. & Phillips, C.B. An interview is not a consultation: The dual role of clinician-researcher. Lessons from an ethnographic study exploring rural patients and family caregivers’ perspectives on the ‘good death’. 22nd International Congress on Palliative Care, Montreal Canada Oct-18 Oral presentation of qualitative work arising from PhD thesis exploring patient and carer perspectives on good death in a rural setting
  • Rainsford, S., Glasgow, N.J., Phillips, C.B., MacLeod, R.D., Wiles R.B. (2018). The influence of rural culture on place of death: An ethnographic study exploring the experiences of patients and family caregivers. 22nd International Congress on Palliative Care, Montreal Canada
  • Rainsford, S., Glasgow, N.J., Phillips, C.B., MacLeod, R.D., Wiles R.B. (2018). Dying in a safe place is more important than dying at home. An ethnographic study of rural patients and family caregivers. 10th World Research Congress of the European Association of Palliative Care, Bern, Switzerland
  • Rainsford, S., Phillips, C.B., Glasgow, N.J., MacLeod, R.D., Wiles R.B. (2018). “This is Mum’s home now”. Residents’ and families’ experiences on dying in rural residential aged care. 10th World Research Congress of the European Association of Palliative Care, Bern, Switzerland
  • Rainsford, S., Phillips, C.B., Glasgow, N.J., MacLeod, R.D., Wiles R.B., Wilson D. (2017). Place of death does not determine the ‘good death’ for rural family caregivers. An ethnographic study. European Association of Palliative Care Congress, Madrid, Spain
  • Rainsford S., Glasgow N.J., MacLeod R., Phillips C., Neeman T., Wiles R. (2017). “I want to stay home and die on the farm.” The actual place of death in a rural setting. European Association of Palliative Care Congress, Madrid, Spain